Her name is “Rory Bean,” and how you can help her and other children this week
by KARL SUNDBERG
Jan 15, 2013 | 886 views | 0 0 comments | 6 6 recommendations | email to a friend | print


Subject: Her name is “Rory Bean,” and how you can help her and other children this week 

 

Through your esteemed newspaper, I am pleased and honored to express my concern for a young three year old girl suffering from Eosinophilic Esophagitis. This newly recognized disease is a chronic, immune, antigen mediated esophageal disease, which causes Rory to be allergic to almost all food. Her four safe foods are pears, potatoes, sweet potatoes and green seedless grapes. She drinks forty ounces a day of a special amino acid based formula in order to make sure she is getting the nutrition she needs to grow. Although she is a typical looking three year old on the outside, when a new food is trialed she becomes very sick with pain, lethargy, blisters and sometimes vomiting. EoE is considered a newly recognized disease that is still in the early stages of research, although the rate of diagnosis continues to increase. Rory and her family maintain hope that as she matures and with medical advancement, she will again be able to eat food someday soon.  

 

Rory is just one child that is currently receiving treatment at the Phoenix Children’s Hospital. Though this treatment center is based in the southwest, they are serving children from across our country with a wide variety of ailments: from cancer to blood diseases and everything in between. Like many other hospitals, the cost of the core treatment necessary for potential recovery is suffered by insurance companies or in rare cases the family. Many supporting programs, however, are not covered by insurance and rely solely on support of fundraising dollars. Programs like these encourage the healing process by providing emotional support beyond treatment, such as Camp Rainbow that provides a summer camp for children whose lives have been touched by cancer or the CARE program, which extends education and treatment to children dealing with childhood obesity.  

 

Annually, the Phoenix Children’s Hospital partners with the community to host the “Miracles in Motion Marathon” to raise funds necessary to support these programs. While there is no formal entry fee, the PCH Foundation asks every participant to raise $1,500 each as an individual or $1,250 each as a member of a team entering the race. I have never run a half-marathon before, so I am honored that my first endurance run will support so many kids, especially my honor patient Rory. I have also never attempted to raise funds like this before, and I am well short of my $1,500 goal that would allow me to participate in this run. Since the marathon begins this Sunday morning, 20 January, I have until then to continue to fundraise.   

 

I kindly request your newspaper team to provide me media coverage so that my fundraising goal and the support for the children behind it can be realized before I take my first of many steps in the marathon. Any potential supporters can find more information at www.runners4kids.com and donations can be made by clicking the “Support Karl” button or by pressing the “Donate Today” button and searching for my full name as a participant. All donations go securely to the PCH Foundation to support these programs. For any information and in case you are interested in helping, please feel free to contact me at my cell phone number (512) 864-4507 or my email: run4children@gmail.com

 

Yours sincerely, 

Karl Sundberg (Participant) 

P.O. Box 30876 

Mesa, AZ 85275
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